Friday Afternoon Grace Update…

How wonderful it is to have such amazing friends and prayer warriors willing to stand in the gap for you. Though all of this has been unnerving we know we are so very blessed and have certainly felt your prayers. With each comment, message, and text our spirits were lifted and we were reminded just how amazing the Body of Christ is!

The MRI went well this morning. G was in and out in about 30 minutes – probably the longest 30 minutes of my life – but she was in good spirits and like the people in radiology. She actually woke up with a milder headache this morning which was a huge praise! But 30 minutes in a metal tube with constant banging fixed that. By the time the MRI was over she was miserable. I brought her home to sleep it off and do our best to wait patiently for results.

Even though we were praying for swift answers, we knew we might not get them until next week and I reminded myself all day that a slow response was a good thing. Honestly, when the medical community gets in a hurry I’ve learned that usually means something is wrong and needs to be addressed immediately. So when my caller ID said Dr. P after lunch I was both nervous and thankful.

Let me just pause my update here to say – I don’t know what we would do without Dr. P and his team. They have been kind, compassionate, and thorough. When insurance told me on Wednesday it could take up to 30 days to approve the MRI, they went to bat for my girl and had approval the next morning. I have no doubt Dr. P caught Kayleigh’s tumor early and gave us the gift of precious time. And today, he got to deliver good news instead of bad…

“NO MASS”

There are no words for the relief that came from those two words. God is so good!

The scan did show a couple of small things, but the radiologist report said they did not seem significant and would not have bearing on the headaches. The x-ray she had in the office last week showed a polyp in one of her sinus cavities and the MRI gave us a clearer picture. It’s a pretty good size and she’ll need to see the ENT about it, but again – it should have no bearing on the headache. So while I cannot say the scan was completely “clear,” I’m calling this one a win. As my daddy would say, it’s certainly close enough for horseshoes and hand grenades!

Now we will focus on tackling these headaches. Dr. P referred us to Vandy for a pediatric neurologist and warned us it would probably take a little while to get it. His nurse told me if we didn’t hear from them in two weeks to call back. In the meantime we will start treating it with a daily preventative medicine and some stronger pain meds. Hopefully, new meds and a few days off for fall break will make these manageable. Better yet, keep praying with us and let’s get these things gone!

As I was about to wrap this post up with how good our God is my phone started ringing with a Nashville number. You guys must really be praying on over time! That was Vanderbilt scheduling calling at 5:45 on a Friday night to make Grace’s appointment. What hospital does that? How awesome is that???

The first available day is November 15th and I said yes immediately – we’ll take the very first one they have, please and thank you! After I hung up the phone it hit me – that is Kayleigh‘s 5 year heavenly anniversary. I’m not sure what the Lord is up to, but I’m betting He has great things in store for that day and I am going to be praying expectantly.

Thank you sweet friends for walking with us down this road. Once again you and your prayers have carried us through and unexpected season. We would appreciate your continued prayers for G. Specifically that she will not just get relief, but that the headache will go away completely and that new ones will be prevented.

I will update how things are going from time to time, just probably not daily unless it’s needed.

Until Later,

‘Carrow💜

A friend sent me this verse today. It couldn’t have been more perfect…

“I love the Lord because he hears my voice and my prayer for mercy. Because he bends down to listen, I will pray as long as I have breath!”Psalms 116:1-2 NLT

Grace with Kayleigh 💜